{"id":6671,"date":"2023-01-30T17:30:27","date_gmt":"2023-01-30T16:30:27","guid":{"rendered":"https:\/\/blog.ki.se\/rektor\/?p=6671"},"modified":"2023-01-30T17:30:28","modified_gmt":"2023-01-30T16:30:28","slug":"valkommet-beslut-om-ny-biobankslag","status":"publish","type":"post","link":"https:\/\/blog.ki.se\/rektor\/2023\/01\/30\/valkommet-beslut-om-ny-biobankslag\/","title":{"rendered":"V\u00e4lkommet beslut om ny biobankslag"},"content":{"rendered":"\n<p>F\u00f6rra veckan (25 januari) sa riksdagen ja till f\u00f6rslaget om en ny biobankslag. Det \u00e4r ett lika gl\u00e4djande som efterl\u00e4ngtat beslut. Den f\u00f6rra lagstiftningen har ganska exakt 20 \u00e5r p\u00e5 nacken, den tr\u00e4dde i kraft den 1 januari 2003. Sedan dess har utvecklingen varit b\u00e5de snabb och omfattande, inte minst n\u00e4r det g\u00e4ller forskningens m\u00f6jligheter. Behovet av en moderniserad och uppdaterad biobankslag har vuxit parallellt med denna utveckling. D\u00e4rf\u00f6r \u00e4r det nu fattade beslutet ett stort och v\u00e4lbeh\u00f6vligt steg fram\u00e5t.<\/p>\n\n\n\n<p>Jag har<a href=\"https:\/\/blog.ki.se\/rektor\/2022\/05\/13\/regeringen-ska-utreda-mojligheten-att-forbattra-anvandningen-och-tillgangligheten-av-halsodata\/\" target=\"_blank\" rel=\"noreferrer noopener\"> tidigare skrivit om<\/a> hur viktigt det \u00e4r att lagstiftning och regelverk h\u00e4nger med i utvecklingen s\u00e5 att vi kan anv\u00e4nda st\u00f6rre del av den kunskapspotential som finns inom h\u00e4lsodata och biobanker, samtidigt som etiska och integritetsfr\u00e5gor beaktas.  <\/p>\n\n\n\n<p>Den nu aktuella lagen reglerar hur prover av identifierbart humanbiologiskt material f\u00e5r samlas in, bevaras och anv\u00e4ndas i en biobank. F\u00f6r\u00e4ndringarna g\u00f6r att bland annat att forskning baserad p\u00e5 humanbiologiska prov som f\u00f6rvaras i biobankerna underl\u00e4ttas. Det \u00e4r utm\u00e4rkt.<\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Under l\u00e5ng tid<\/h4>\n\n\n\n<p>KI har arbetat strategiskt och med praktisk service kring dessa fr\u00e5gor under l\u00e5ng tid, inte minst via&nbsp;<a href=\"https:\/\/ki.se\/forskning\/ki-biobank\" target=\"_blank\" rel=\"noreferrer noopener\">KI Biobank<\/a>&nbsp;som startades redan 2004. D\u00e4r finns en gedigen kunskap och stor kompetens inom omr\u00e5det. Verksamheten vid KI Biobank kommer nu att trappa upp sina aktiviteter i syfte att informera och ge r\u00e5d till KI:s forskare om de juridiska f\u00f6r\u00e4ndringarna och vad de inneb\u00e4r n\u00e4r det g\u00e4ller f\u00f6ruts\u00e4ttningar och nya m\u00f6jligheter f\u00f6r den medicinska forskningen.<\/p>\n\n\n\n<p>Den nya biobankslagen har bland annat ett ut\u00f6kat till\u00e4mpningsomr\u00e5de j\u00e4mf\u00f6rt med nuvarande lagstiftning, och utg\u00e5r ifr\u00e5n syftet med provsamlingen snarare \u00e4n var proverna tas, som \u00e4r fallet i den nuvarande lagstiftningen. <\/p>\n\n\n\n<h4 class=\"wp-block-heading\">Se \u00f6ver reglerna<\/h4>\n\n\n\n<p>Ut\u00f6ver den nya lagstiftningen uppmanar riksdagen, genom ett tillk\u00e4nnagivande, regeringen att se \u00f6ver reglerna n\u00e4r det g\u00e4ller&nbsp;forskning p\u00e5 prover fr\u00e5n personer som inte kan fatta egna beslut.&nbsp;Syftet h\u00e4r \u00e4r att s\u00e4kerst\u00e4lla att lagen medger att prover i vissa fall och under vissa f\u00f6ruts\u00e4ttningar ska kunna bevaras f\u00f6r att anv\u00e4ndas i forskning samtidigt som ett tillfredsst\u00e4llande integritetsskydd tillgodoses.<\/p>\n\n\n\n<p>Den nya lagen och \u00f6vriga lag\u00e4ndringar b\u00f6rjar g\u00e4lla den 1 juli 2023. <\/p>\n","protected":false},"excerpt":{"rendered":"<p>F\u00f6rra veckan (25 januari) sa riksdagen ja till f\u00f6rslaget om en ny biobankslag. Det \u00e4r ett lika gl\u00e4djande som efterl\u00e4ngtat beslut. Den f\u00f6rra lagstiftningen har ganska exakt 20 \u00e5r p\u00e5 [&hellip;]<\/p>\n","protected":false},"author":100,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[381,160,32,466],"tags":[936,768,434],"class_list":["post-6671","post","type-post","status-publish","format-standard","hentry","category-forskning","category-halso-och-sjukvard","category-organisation","category-samhalle","tag-biobank","tag-lagstiftning","tag-riksdagen"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>V\u00e4lkommet beslut om ny biobankslag - Ole Petter Ottersen, president Karolinska Institutet 2017-2023<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/blog.ki.se\/rektor\/2023\/01\/30\/valkommet-beslut-om-ny-biobankslag\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"V\u00e4lkommet beslut om ny biobankslag - Ole Petter Ottersen, president Karolinska Institutet 2017-2023\" \/>\n<meta property=\"og:description\" content=\"F\u00f6rra veckan (25 januari) sa riksdagen ja till f\u00f6rslaget om en ny biobankslag. 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